Powered by

Reliving a nightmare: Parents can suffer from post-traumatic stress disorder after injury to child

 Email Print   
By Liz Hoffman
Monday, January 18, 2010
 
 

Ali Bergstrom heard "code blue" blare over the hospital loudspeaker, but it wasn't until the nurses came swarming in that she realized it was her 4-month-old son they were talking about. As the doctors struggled to revive the infant, Bergstrom stood helpless in the corner, saying over and over "Mommy loves you."

That was two years ago. Bergstrom's son, Chille, had heart surgery, recovered, and today is a thriving toddler who is learning Arabic and Mandarin. But in the months immediately following his brush with death, it was Bergstrom who couldn't get back to normal.

She couldn't sleep, shaken awake by nightmares that they were back in the intensive care unit. She couldn't watch her son sleep at night because to her, he looked dead.

"People would be going on with their lives all around me and none of it made any sense to me," the Long Island, NY, mom remembers. "It was like they were speaking a different language or living in a different world. I was completely numb."

Bergstrom was eventually diagnosed with post-traumatic stress disorder, the result of her son's trauma and the months she spent nonstop in the intensive care unit. She takes medication to help her sleep and says therapy has taught her to live in the moment and rely on others.

But most importantly, she says, she learned that being there for her son meant taking care of herself.

WHEN TO GET HELP

Post-traumatic stress disorder is most often diagnosed in survivors of war, rape, abuse, accidents or other serious trauma. The Children's Hospital of Philadelphia has created a Web site -- AfterTheInjury.org -- to help parents and their kids on the road to recovery. Visit the Web site or download a fact sheet.

  • If you have symptoms that keep you from getting back to usual activities

  • If your symptoms seem to be getting worse over time rather than better, or last more than a month.

  • If you have trouble sleeping or recurring nightmares

  • If you have thoughts of suicide

SOURCE: AfterTheInjury.org

"I had focused so much on his needs that I completely had ignored my own," says Bergstrom, who started a blog and is currently writing a book about her experiences. "I thought that was what being a good mom was. It's not."

Bergstrom isn't alone. In a study released last week from researchers at the Children's Hospital of Philadelphia, more than one-third of parents suffered from PTSD after a traumatic injury to their child. Parents reported reliving the event, avoiding places or situations that reminded them of it, and overall feelings of jumpiness and anxiety.

Parents who actually saw their child in pain or thought their child's life was in danger were far more likely to experience symptoms.

That's not surprising, says Dr. Cassandra Kisiel, a psychologist at Northwestern University's Feinberg School of Medicine and a trauma consultant with the state's Department of Children and Family Services.

"Parents understand that their primary job is to keep their kids safe," she says. "Even just a fever or a stomach ache can send anxiety levels spiking, so imagine what a serious injury or a life-threatening illness can do to a parent emotionally."

And it's not just single traumatic events that can trigger post-traumatic stress disorder, says Dr. Astrid Herard, a pediatric psychiatrist at the University of Chicago. For parents of children with chronic diseases, the years spent cycling in and out of hospitals and doctors offices can take a collective toll and produce similar symptoms.

"There's the guilt at not being able to help, and then the trauma itself of years of invasive procedures or extended hospitalizations," she says. "There's all this focus on the child that it can build and build on the parents."

Symptoms that interfere with daily functioning or last more than a month after the incident are cause for concern, both doctors say. PTSD, which is most often diagnosed in war veterans or survivors of violent traumas, can be treated with drugs and therapy.

"It can feel like your whole world is crashing down," Bergstrom says. "But once I understood and accepted what was happening to me, it became easier to see a way out of it."

And she remembers the exact moment she started to feel like herself again. It was about six months after Chille's heart failure and two months after the end of her intensive therapy regimen. She heard a noise in his room in the middle of the night. Heart pounding, she hurried to check on him, but found him fast asleep.

"I thought, 'He looks so beautiful,'" she says. She got her camera and snapped a photo. "I realized that I was coming back to my old self. Only better and smarter."

 
 
 
 
This is right on

By Julie on Friday, October 21, 2011

Thank you for sharing. I can really relate. I have 4 kids. In a span of 12 months my youngest was born with Down syndrome and needed open heart surgery. 3 months later my oldest had a grand mal seizure and was diagnosed with epilepsy. 4 months later my son couldn't breathe and was diagnosed with asthma. Like the mom of triplets said, you hold it together and keep going. Now I just feel this intense need to rest. I take more naps and see a therapist as well as help in the form of an antidepressant. But I really want to get that "spark" of life back again. It will happen. Oh, and everyone is fine now:)

Teen Parenting Programs

By Teenage Stress on Friday, October 21, 2011

Parenting programs are highly effective in teenagers stress and depression recovery. Parenting programs are recommended after assessment and intervention of teenage problems. Program teaches various tips, guidelines and advices to parents to teen stress recovery. For fulfilling special needs and demands of troubled kids treatment centers offer counseling and parenting programs. http://www.troubledteens.net/Problems-in-Teens/Stress-among-teenagers.html

Mom's meltdown

By Colleen on Friday, October 21, 2011

I too am having a very difficult time getting back to "normal" after my daughter's life altering motor vehicle accident. She is now a paraplegic and I'm having such a hard time coping with her injuries and the grief I feel for her loss.

Very informative

By GerryG on Friday, October 21, 2011

A very good read. I am making a research right now on post -trauma of parents in different aspects of parenthood and this post is just what I needed. Regards, Gerry - [url=http://www.Injury-Settlement-Guide.com]pain suffering settlements[/url] consultant

me too

By Lara Cotten on Friday, October 21, 2011

I have triplets who were born 12 weeks prematurely and each weighed under 2 pounds. One of my children had a rare breathing problem and spent 6 months of his first year on a ventilator. He had several near death experiences, grand mal seizures, infections, and the list goes on. Before he was two his health care cost a million dollars. My husband is a coach and spent most of his time away from the house. For the first two years I had a lot of help but then we moved and I was without help and I had to go back to work. I held it together mentally until the kids turned five but I finally fell apart. It was the worst experience of my life. It has taken years to get over it. I hid it well but inside I was just broken. Thanks for recognizing this issue. I think there is a need for counselors in the hospital in NICU's and PICU's. Parents, especially the primary caretaker (mom), endure too much over long, intensive hospital stays to deal with the mental and physical strain. Family members can try to help but don't have the expertise and can actually make things worse. Thankfully, my children are now 13 years old and healthy. I have been back at work for several years and my husband and I have a good marriage again.

parental ptsd

By sherf on Friday, October 21, 2011

A great overview of what can be disabling to parents and promote further family disruption. This is not a one time thing. It persists for years and may sneak up whenever you least expect it, but it can be managed. PTSD is a lonely problem. Sharing the issue contributes to healing.

thank u!

By Candice Michels on Friday, October 21, 2011

I just sent this to my sister. I think she may have pstd since her son almost died in her pool. She has nightmares all the time and I think that what this lady did is admirable to think about being a better mom. I think that she is a good mom for getting help! I wish my sister would.

PTSD

By meryl on Friday, October 21, 2011

i have this to.

Thank you!

By Susan on Friday, October 21, 2011

I didn't realize that there was a name for what I am experiencing. Thank you for showing me that there is help.

A Friend

By Barbara Hochberg on Friday, October 21, 2011

Ali and Chille are friends from way back. The courage that they both have shown incredible courage and strength . Chille remember we have the Central Park date one Saturaday when mom is working out for the Zoo.

Thanks

By Roy Assad on Friday, October 21, 2011

Ali, thanks for the courage in sharing your story. I am sure this is very helpful to others who are facing the challenges you have faced.

Directories

Entertainers/Party Supplies
Nannies
Home-based business
Resale