Who: Jack Falejczyk, 12
Family: Parents Mark and Beth, sister Erin,
Hometown: Elk Grove Village
In mom's words:
Jack Falejczyk is a pretty typical junior high boy. He plays the
violin in his school orchestra and takes piano lessons. He races on
a swim team. He loves video games.
But Jack Falejczyk also is pretty extraordinary. He learned to
play the violin and the piano completely by ear. When he swims,
someone taps him on the head so he knows when to turn. And his
video games are played on a blank screen, with only sound guiding
Jack, 12, has been completely blind since birth. But to him, it's
not an impediment.
"I don't let my blindness stop me," Jack says. "You don't need
vision to do pretty much anything."
Jack has a condition called Leber's congenital amaurosis, a
genetic eye disease. When he was about two months old, his parents,
Mark and Beth, noticed he wasn't reaching the same milestones their
daughter, Erin, had. He also developed nystagmus, involuntary eye
movement, which doctors tried to correct with glasses. But at six
months old, he was officially diagnosed with Leber's, and the
Falejczyks were told "to prepare for a lifetime with a child with
For Mark and Beth, that meant making sure his life was as
"normal" as his sister's.
"They don't give you a manual when they diagnose your child as
having special needs," Beth says. "But for me personally … any
opportunity that we could have to make him typical is what we were
going to do."
It also means letting Jack try all kinds of things, such as
climbing a 30-foot rock wall or driving a speedboat.
"I firmly believe that Jack's only limitation is what the people
around him can't envision," Beth says. "If we just let him do
anything, he's going to do everything he can to do it and succeed
That's not to say that his parents never get nervous letting him
try new things. But Beth says what worries her most is Jack's
acceptance by his peers. So when he recently switched to a private
swim club, the Faleczyks blacked out a pair of swimming goggles so
his teammates could experience what the pool is like for Jack.
"Now they kind of look at him and go, 'Wow, it's amazing what
you can do,'" Beth says. "It was really so that we could tear down
those walls that were preventing …acceptance."
He's become a bit of a celebrity on his local swim circuit; even
opponents rush to congratulate him after doing well in a race.
"Jack blows us all away," Mark says.
In recent years, doctors at the Scheie Eye Institute in
Philadelphia have cured some forms of Leber's and are making
strides with others. And although Jack says he's "looking forward
to being given the gift of sight" so he can do new things, it seems
somewhat unnecessary. After all, Jack Falejczyk is a kid who does
things on a daily basis that most sighted people won't ever
"I found out that I do not need vision to succeed," Jack says.
"I only need a goal and the ability to not let my … visual
impairment stop me from doing those things."
Elizabeth Diffin is the senior editor at Chicago Parent. She lives in Wheaton.
See more of Elizabeth's stories here.
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