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Reader essay | Finding joy as we go along

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Janoah White
Thursday, February 11, 2010

I was in the grocery store and an elderly lady asked if my son could do a favor for her. I said yes, although I wasn't quite sure what the favor would be. It was an automatic response, not thinking that whatever she asked, he might not be able to do.

I guess I should have thought about it. She asked if he could tie her shoe for her. It seems like it wouldn't be a big deal, except it was. See, at 10 years old, my autistic son can't even tie his own shoes, let alone someone else's.

Welcome to my world.

mylife1I can't even count the number of times, or describe the way it feels, when I watch other children my son's age do things that he can't do. He can't participate in a football or basketball game with his peers because he doesn't correctly process or follow the rules. Instead, he'd rather make his own rules.

The same goes for video games. Sure he likes them, but he prefers randomly pushing the buttons, rather than understanding the concept and playing a game to try to win. His behavior is in many ways very different from other kids his age, and the older he gets, the wider the gap seems.

There are occasions when other children want to include him, and I'm grateful for those times. Once I have explained to them how he is different, they usually want to be helpful, or at the very least, understanding. They join him in his world instead of expecting him to do things their way. Sometimes, though, children have a hard time wrapping their mind around the fact that he doesn't act like them, especially when he does things that invade their personal space.

I try to focus on the things that my child can do, rather than those things that make him different from society. It's not always easy, but accepting and loving him for who he is means appreciating the gifts God has blessed him with. He is super-intelligent and his memory for the things that interest him is excellent.

Even though his thought process may be different from mine, he is great at figuring things out. He is very happy and full of energy, which wears me out sometimes, but I thank God he has the ability to walk, run and play. Even though he doesn't really have conversations with me, he can talk. He can ask and answer some questions, and although sometimes it's not easy for him, we can get through the basics.

There are times, though, like the day in the grocery store when he couldn't tie the lady's shoe or when I see other children playing together while he plays alone, that I get kind of sad. I think it's natural as a parent to want to see our children function at the same level as their peers.

Of course we want to see them make friends and develop relationships, and it's a hard pill to swallow when they can't do that.

As he approaches his teenage years, I really don't know what to expect. The thought of puberty scares me. However, I know I'm not the first parent to travel this path, and I won't be the last.

I'm just bracing myself for the unknown, and finding the joy in it as we go along.

This article appeared in the Spring 2010 edition of Chicago Special Parent.
 
 
 
 
Thanks!

By Janoah White on Tuesday, August 30, 2011

Thank you all so much, once again!

"Blessings"

By Chiquena Thomas on Tuesday, August 30, 2011

WOW! To Marshawn's mom this is a great article. One thing you have to remember is we serve a mighty God that never makes mistakes. He is honest and true in all his ways. I feel your pain, but it will be alright just never stop praying for your son. Keep up the good work! God does the IMPOSSIBLE He Will turn your situation around. Marshawn is beautiful

"Keep holding On"

By Tareka Williams on Tuesday, August 30, 2011

Always keep GOD first!!! You are very blessed to have a wonderful gift from GOD...(smiles).GOD challenges you everyday and you shall NEVER give up.Marshawn is proud of you and we all are!!!! Keep up the GREAT mother work!!!!!!!

article

By Gloria Brown on Tuesday, August 30, 2011

Janoah, What a powerful article! Well done. You are indeed a great mother and Marshawn is blessed to have you. I pray that the Lord will give you the wisdom you need at the right time to take you through whatever may come. You don't have to worry. Just trust. Much love to you both.

You're an Amazing Mother!

By Roberta Gamboa on Tuesday, August 30, 2011

Janoah, Marshawn is so lucky to have you as his mother. I know it's hard sometimes, but you are truly blessed. My memories of the years I spent with him still make me smile. I miss you both....lots of love!

It's the God in YOU!

By michelle walker on Tuesday, August 30, 2011

You strength and determination of love for your son will get you through life. It is by FAITH and the will of GOD that will keep you in your time of despair For there is JOY in the morning always with Jesus (smile forever) God is Love and you got a bunch of it I can see it in you eyes and Marshawn 's heart.

Insightful

By Bianca Bailey on Tuesday, August 30, 2011

You have painted a realistic picture of your day-to-day experiences. I see the gifts in you as a parent and the special annointing that God has placed on Marshawn. Continue to seek God's guidance and Marshawn will be fine through puberty and beyond.

Thank You!

By Janoah White on Tuesday, August 30, 2011

I just want to thank everyone for your encouragement and love. I really appreciate it. It means the world to me!

Inspiring!

By Takesha Spencer on Tuesday, August 30, 2011

This is truly a great and inspiring article. My nephew is truly a blessing. God couldn't have given him a better mom. I pray that God continues to strengthen you.

Wonderful Story

By Kyshia Moore on Tuesday, August 30, 2011

You know I always have you and Marshawn in my prayers.....and you also knew I understand everything you go through with having a autistic son, even though its not my son but I have lived with my autistic brother all my life so I know how it is behind close doors.The way you feel when you want him to function like other kids thats how I felt about my brother but when he started doing my homework(LOL) I was all good!!!!But as always you all are in my prayers !!!!!

Mrs.

By Deloris Tanksley on Tuesday, August 30, 2011

This was an excellent article.I was so touch by it. You seem to have a great approach to working with your son.When he reaches his years of puberty ,continue to teach functional skills just as you do now ,He may not always understand the concept,but teach the skill anyway in you same loving manner. As a former teacher of High school students with autism , I believe you will have some success. Be encouraged, enjoy motherhood whenever you can as do all mothers, and just lovingly teach. Your Grams is my mentor. Deloris Tanksley

Excellent

By Adrienne Woods on Tuesday, August 30, 2011

I thought this was a very excellent article and it opened my eyes to parents dealing with autistic children. You and Marshawn will be in my prayers.

Love is Blind

By Mary Greer on Tuesday, August 30, 2011

I see Marshawn as child who responds to a loving embrace, who thinks of a visit to great- grandmother!s house as a time to eat, and always asks for the telephone book because he loves to read maps. He is very special to me and I love him dearly....Grams

But God...

By Shirley Smith on Tuesday, August 30, 2011

Wow.....your article really touched my heart..continue to be strong in the Lord and the power of is might...We who have been blessed with children w/o disabilities really do not know what we are blessed with....I admire you for sharing this information for other to see. Most people are are uneducated when it comes to autism and other special need children...I know that there are some who are high functioning. However, there are others who aren't....continue to be an advocate for your son..God bless you.....and your son.....my prayers are with you..

Patience

By Laurie Clemons on Tuesday, August 30, 2011

Every time I see you with Marshawn, I understand the true definition of "patience". I often find myself short tempered with my own child for simple things and then I see you and I understand that I need to approach each situation with the same attitude you do. Especially when you have to deal with twice as many if not more. Love you to pieces and great article!

"Strength"

By Theresa Harding on Tuesday, August 30, 2011

You are truly a strong woman that can defintiely teach other parents.I was actually in tears reading your article and know that it is not easy to raise any child.Your strength in God will get you through - even the teenage years!

friend

By Chevon LeDree on Tuesday, August 30, 2011

Whenever I see you with him, I am reminded that there are parents that still give 110% + to their children. Your patience and love for him shines through your bubbly and pleasant personality. He has the best mom he would ever need! Love You!

"Finding joy"

By Chevelle Rowe on Tuesday, August 30, 2011

You have a wonderful story to share and this experience has only made you stronger! Always in my prayers. Love you guys!

Inspired Writer

By Char-Michelle McDowell on Tuesday, August 30, 2011

This is an great article that will inspire and motivate others to embrace the challenges of parenting. Thank you for sharing your story. Although I have no children at this time, I will remember to be greatful for the precious gift of my future children!

Writer

By Jennifer Agnew on Tuesday, August 30, 2011

This article is awesome. It brings tears to my eyes but it also helps me appreciate the joy of children and the gift of God to be blessed with seemly heathy "normal" children. I will always keep you guys in my prayers. Love both to pieces and whole again! -Always, BF!

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