Tourette Syndrome Association
• 800 Roosevelt Road, Building A Suite 10, Glen Ellyn
• (630) 790-8083 or (877) 872-4155
• E-mail: [email protected]
• Web site: www.tsa-illinois.org
Ariel Small races in the door. He just spent his after-school
hours lifting weights and running up hills. "Gotta shower," calls
the energetic teen as he races up the stairs. In spite of a
grueling school and athletic schedule, the Highland Park
15-year-old can't wait to be interviewed-he's down in minutes and
ready to talk. He has a lot to tell people and no time to
By anyone's standards, Ariel Small's accomplishments would be
substantial for a teen-captain of the freshman football team,
freshman wrestling conference champion and freshman wrestling MVP.
But add the obstacles he has faced from Tourette Syndrome and
Obsessive-Compulsive Disorder and his accomplishments rate even
more remarkable. And that's what Ariel needs to talk about.
Feeling successful in spite of his illnesses hasn't come easily
for Ariel or for his parents, Robin and David. The middle child of
five boys, Ariel was diagnosed with Tourette Syndrome when he was
"You have a feeling of hopelessness, and I didn't know anyone
who had this," Robin says.
School was tough for Ariel, especially once he reached middle
school. One teacher pulled him out of the classroom and told Ariel
to do all his ticking now, so he wouldn't disrupt her during class.
Even though he had a diagnosis and a special education plan, that
didn't stop one school principal from telling the family he didn't
buy into Tourette's. He thought it was just an excuse for bad
The irony is that while adults in his life were unaccepting of
his illnesses, many of Ariel's classmates were able to look past
the diagnosis. In eighth grade, Ariel was elected class president.
And getting involved with the Tourette Syndrome Association changed
the way he looked at his illness.
This year, Ariel filled out an application to be a TSA youth
ambassador. After being selected, David and Ariel headed to
Washington, D.C., for three days of training. He met other kids
with Tourette Syndrome and realized they were "all a bunch of
really good kids," he remembers. He also realized a lot of these
kids put up with the same problems he had, of people not
understanding Tourette's. He decided he wanted to help all the kids
who had to not only overcome a disability, but also the judgments
of people who didn't understand.
"Ariel wanted to turn the challenges of eighth grade into
something positive," says his dad, David. As a youth ambassador,
Ariel has been speaking in front of groups and schools about living
with Tourette Syndrome.
"After eighth grade, there was a point where I dreamed I could
come back and help other kids with Tourette's," Ariel says. "When I
was on the airplane coming back (from Washington, D.C.), I knew I
had accomplished a dream. It showed me it was a step toward my
ultimate goal of teaching awareness."
Advice from Ariel's family
David Small:"You have to be an advocate for your child. You need
to reach out to all the teachers, social workers, principals. You
need to educate them and not assume they know or have effective
ways of dealing with it."
Robin Small: "The number one thing is to be supportive of your
child. If they're not getting support (outside the home), then they
really need family."
Aeron Small, 20: "You have to teach siblings how to deal with
it. It takes a little bit of time. ... It will just feel unfair for
Liz DeCarlo is the former senior editor at Chicago Parent.
See more of Liz's stories here.
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